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Complete Bibliography of References

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Ahmann E. Developing cultural competence in health care settings. Pediatric Nursing. 2002;28:133-137.

Als H, Lawhon G, Duffy FH, McAnulty GB, Gibes-Grossman R, Blickman JG.  Individualized developmental care for the very low birthweight preterm infant: medical and neurofunctional effects. Journal of the American Medical Association. 1994;272(11):853-858.

American Academy of Pediatrics, Committee on Fetus and Newborn. Hospital discharge of the high-risk neonate – proposed guidelines. Pediatrics. 1998;102(2):411-7.

Anderson GC, Chiu SH, Dombrowski MA, Swinth JY, Albert JM, Wada N. Mother-newborn contact in a randomized trial of kangaroo (skin-to-skin) care. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 2003;32(5):604-611.

Association of Women’s Health, Obstetric and Neonatal Nurses. Standards and Guidelines for Professional Nursing Practice in the Care of Women and Newborns (6th ed.). Washington, DC: AWHONN; 2003.

Brazy JE, Anderson BM, Becker PT, Becker M. How parents of premature infants gather information and obtain support. Neonatal Network. 2001;20(2):41-48.

Britain LA, Holmes GE, Hassanein RS. High-risk children referred to an early intervention developmental program. Clinical Pediatrics. 1995;34(12):635-641.

Browne J, Langlois A, Ross ES, Smith-Sharp S. Beginnings: an interim individualized family service plan for use in the intensive care nursery. Infants and Young Children. 2001;14(2):19-32.

Bruns DA, McCollum JA. Partnerships between mothers and professionals in the NICU: caregiving, information exchange, and relationships. Neonatal Network. 2002;21(7):15-23.

Bruns DA, Steeples T. Partners from the beginning: guidelines for encouraging partnerships between and NICU and EI professionals. Infant-Toddler Intervention. 2001;11(3-4):237-247.

Charchuk M, Simpson C. Loyalty and hope: keys to parenting in the NICU. Neonatal Network. 2003;22(4):39-45.

Coffman S, Ray MA. African American women describe support processes during high-risk pregnancy and postpartum. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 2002;31(5):536-544.

Committee on Bioethics, American Academy of Pediatrics. Guidelines on foregoing life-sustaining treatment. Pediatrics. 1994;93(3):532-536.

Conde-Agudelo A, Diaz-Rossello JL, Belizan JM.  Kangaroo mother care to reduce morbidity and mortality in low birthweight infants. Cochrane Database Systematic Review. 2003;(2):CD002771.

Curley MA, Meyer EC. Parental experience of highly technical therapy: survivors and nonsurvivors of extracorporeal membrane oxygenation support. Pediatric Critical Care Medicine. 2003;4(2):214-219.

Cuttini M, Regabliato M, Bortoli P, Hansen G, DeLeeuw R, Lenoir S, et al. Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal unit policies in Europe. Archives of Disease in Childhood: Neonatal Edition. 1999;81:F84-F91.

Dokken DL, Sydnor-Greenberg N. Helping families mobilize their personal resources. Pediatric Nursing. 1998;24(1):66-69.

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Forsythe P. New practices in the transitional care center improve outcomes for babies and their families. Journal of Perinatology. 1998;18(6pt2):s13-17.

Frischer L. The death of a baby in the infant special care unit. Pediatric Clinics of North America. 1998;24(3):691-699.

Furman L, Minich N, Hack M. Correlates of lactation in mothers of very low birth weight infants. Pediatrics. 2002;109(4):e57.

Gale G, Franck L. Toward a standard of care for parents of infants in the neonatal intensive care unit. Critical Care Nurse. 1998;18(5):62-74.

Galvin E, Boyers L, Schwartz PK, Jones MW, Mooney P, Warwick J, Davis J. Challenging the precepts of family-centered care: testing a philosophy. Pediatric Nursing. 2000;26(6):625-632.

Gannon BA. Caring one day at a time. Neonatal Network. 2000;19(5):25-32.

Gardner G, Barrett T, Coonan K, Cox H, Roberson B. Parent support programmes in neonatal intensive care: researching the issues. Neonatal, Paediatric and Child Health Nursing. 2002;5(1):20-25.

Gordin P, Johnson BH. Technology and family-centered perinatal care: conflict or synergy. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 1999;28(4):401-408.

Gray JE, Safran C, Davis RB, Pompilio-Weitzner G, Stewart JE, Zaccagnini L, Pursley D. Baby carelink: using the Internet and telemedicine to improve care for high-risk infants. Pediatrics. 2000;106(6):1318-1324.

Griffin T, Bradford LP, Engstrom JL. Mothers performing creamatocrit measures in the NICU: accuracy, reactions, and cost. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 2000;29(3):249-257.

Griffin T, Kavanaugh K, Soto CF, White M. Parental evaluation of a tour of the neonatal intensive care unit during a high-risk pregnancy. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 1997;26(1):59-65.

Griffin T, Wishba C, Kavanaugh K. Nursing interventions to reduce stress in parents of hospitalized preterm infants. Journal of Pediatric Nursing. 1998;13(5):290-295.

Hadden DS. The long anticipated day: strategies for success when a premature infant comes home from the neonatal intensive care unit. Young Exceptional Children. 2000;3(2):21-26.

Halamek LP. The advantages of a prenatal consultation by a neonatologist. Journal of Perinatology. 2001;20(6):116-120.

Health Canada. Family-Centered Maternity Care and Newborn Intensive Care: National Guidelines. Ottawa, Ontario: Health Canada; 2000.

Hickson GB, Clayton EW, Miler CS, Pichert JW, Entman SS. Satisfaction with obstetric care: relation to neonatal intensive care. Obstetrics & Gynecology. 1998;91(2):288-291.

Holditch-Davis D, Miles MS. Mothers’ stories about their experiences in the neonatal intensive care unit. Neonatal Network. 2000;19(3):13-21.

Hurst I. Imposed burdens: a Mexican American mother’s experience of family resources in a newborn intensive-care unit. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 2004;33(2);156-163.

Hurst I. Vigilant watching over: mothers’ actions to safeguard their premature babies in the newborn intensive care nursery. Journal of Perinatal and Neonatal Nursing. 2001;15(3):39-57.

Hurst NM, Valentine CJ, Renfro L, Burns P, Ferlic L. Skin-to-skin holding in the neonatal intensive care unit influences maternal milk volume. Journal of Perinatology. 1997;17(3):213-217.

Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century.  Washington, DC: Institute of Medicine; 2001.

Jansen JL. A bereavement model for the intensive care nursery. Neonatal Network. 2003;22(3):17-23.

Jarrett MH. Parent partners: a parent-to-parent support program in the NICU: part I: program development. Pediatric Nursing.1996;22(1):60-63.

Jarrett MH. Parent partners: a parent-to-parent support program in the NICU: part II: program implementation. Pediatric Nursing.1996;22(2):142-145,149.

Johnson BH, Abraham MR, Parrish RN. Designing the neonatal intensive care unit for optimal family involvement. Clinics in Perinatology. 2004;31(2):353-382.

Johnston CC, Stevens B, Pinelli J, Gibbins S, Filion F, Jack A, et al. Kangaroo care is effective in diminishing pain response in preterm neonates. Archives of Pediatric and Adolescent Medicine. 2003;157:1084-1088.

Journal of Perinatal and Neonatal Nursing. Theme issue devoted to ethical issues in perinatal and neonatal care. 14(2): 2000.

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Kassity N, Lockridge T. Should parents participate in patient rounds in the NICU? Maternal and Child Nursing. 1999;24(2):64-65.

Kenner C, Lott JW. Parent transition after discharge from the NICU. Neonatal Network. 1990;9(2):31-37.

Kerr SM, McIntosh JB. Disclosure if disability: exploring the perspective of parents. Midwifery. 1998;14(4):225-232.

King NMP. Transparency in neonatal intensive care. Hastings Center Report. 1992;22:18-25.

Kirsten GF, Bergman NJ, Hann FM. Kangaroo mother care in the nursery. Pediatric Clinics of North America. 2001;48(2):443-452.

Koh T, Jarvis C. Promoting effective communication in neonatal intensive care units by audiotaping doctor-patient conversations. International Journal of Clinical Practice. 1998;52(1):27-29.

Lawhon G. Facilitation of parenting the premature infant within the newborn intensive care unit. Journal of Perinatal and Neonatal Nursing. 2002;16(1):71-82.

Little GA. Parents on rounds: the debate. Advances in Family-Centered Care. 2001;7(1):21-24. Available through the Institute for Family-Centered Care, Bethesda, MD.

Loo KK, Espinosa M, Tyler R, Howard J. Using knowledge to cope with stress in the NICU: how parents integrate learning to read the physiologic and behavioral cues of the infant. Neonatal Network. 2003;22(1):31-37.

Luckner KR, Weinfeld IJ. Informed consent as a parent involvement model in the NICU. Bioethics Forum. 1995;11(1):35-41.

Lundqvist A, Nilstun T, Dykes AK. Both empowered and powerless: mothers’ experiences of professional care when their newborn dies. Birth. 2002;29(3):192-199.

MacDonald H, Committee on Fetus and Newborn, American Academy of Pediatrics. Perinatal care at the threshold of viability. Pediatrics. 2002;110(5):1024-1027.

Mancini A, While A. Discharge planning from a neonatal unit: an exploratory study of parents’ views. Journal of Neonatal Nursing. 2001;7(2):59-62.

McGrath JM. Building relationships with families in the NICU: exploring the guarded alliance. Journal of Perinatal and Neonatal Nursing. 2001;15(3):74-83.

McHaffie HE, Laing IA, Lloyd DJ. Follow-up care of bereaved parents after treatment withdrawal from newborns. Archives of Disease in Childhood. 2001;84:F125-F128.

Meier PP. Supporting lactation in mothers with very low birthweight infants. Pediatric Annals. 2003;32:317-325.

Meier PP. Breastfeeding in the special care nursery. Pediatric Clinics of North America. 2001;109(4):e57.

Meier PP, Engstrom JL, Mingolelli SS, Miracle DJ, Kiesling S. The Rush mothers’ milk club: breastfeeding interventions for mothers with very-low-birth-weight infants. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 2004;33(2):164-173.

Montgomery LA, Kleiber C, Nicholson A, Craft-Rosenberg M. A research-based sibling visitation program for the neonatal ICU. Critical Care Nurse. 1997;17(2):29-40.

Moore KAC, Coker K, DuBuisson AB, Swett B, Edwards WH. Implementing potentially better practices for improving family-centered care in neonatal intensive care units: successes and challenges. Pediatrics. 2003;111(4pt2)e450-460.

Morton JA. Strategies to support extended breastfeeding of the premature infant. Advances in Neonatal Care. 2000;2(5):267-284.

Newman CB, McSweeney M. A descriptive study of sibling visitation in the NICU. Neonatal Network. 1990;9(4):27-31.

Nystrom K, Axelsson K. Mothers’ experience of being separated from their newborns. Journal of Obstetric, Gynecologic, and Neonatal Nursing. 2002;31(3):275-282.

Ohgi S, Fukuda M, Moriuchi H, Kusumoto T, Akiyama T, Nugent JK, et al. Comparison of kangaroo care and standard care: behavioral organization, development, and temperament in healthy, low-birth-weight infants through 1 year. Journal of Perinatology. 2002;22(5):374-379.

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Partridge JC, Freeman H, Weiss E, Martinez AM. Delivery room resuscitation decisions for extremely low birthweight infants in California. Journal of Perinatology. 2001;21(1):27-33.

Paul DA, Epps S, Leef KH, Stefano JL. Prenatal consultation with a neonatologist prior to preterm delivery. Journal of Perinatology. 2001;21(7):431-437.

Pearson L. Family-centered care and the anticipated death of a newborn. Pediatric Nursing. 1997;23(2):178-182.

Pinch WJ. When the Bough Breaks: Parental Perception of Ethical Decision-Making in the NICU. Lanham, MD: University Press of America, Inc.; 2002.

Preyde M, Ardal F.  Effectiveness of a parent “buddy” program for mothers of very preterm infants in a neonatal intensive care unit. Canadian Medical Association Journal. 2003;168(8):969-973.

Preyde M, Ardal F, Bracht M. Mothers’ perceptions of the parent buddy program: a program for parents of very pre-term hospitalized infants. Canadian Social Work. 2001;3(2):43-56.

Raines DA. Suspended mothering: women’s experiences mothering an infant with a genetic anomaly identified at birth. Neonatal Network. 1999;18(5):35-39.

Raines DA. Values of mothers of low birth weight infants in the NICU.

Neonatal Network. 1998;17(4):41-46.

Raines DA. Parents’ values: a missing link in the neonatal intensive care equation. Neonatal Network.1996;15(3):7-12.

Redshaw ME, Harris A. Maternal perceptions of neonatal care. Acta Paediatrica. 1995;84(6):593-598.

Roman LA, Lindsay JK, Boger RP, DeWys M, Beaumont EJ, Jones AS, Haas B. Parent-to-parent support initiated in the neonatal intensive care unit. Research in Nursing & Health. 1995;18(5):385-394.

Saigal S, Stoskopf BL, Feeny D, Furlong W, Burrows E, Rosenbaum PL, Hoult L. Differences in preferences for neonatal outcomes among health care professionals, parents, and adolescents. Journal of the American Medical Association. 1999;281(21):1991-1997.

Saunders RP, Abraham MR, Crosby MJ, Thomas K, Edwards NH. Evaluation and implementation of potentially better practices for improving family-centered care in neonatal intensive care units. Pediatrics. 2003;111(4pt2):e437-449.

Society of Pediatric Nurses. Family-Centered Care: Putting It into Action. SPN/ANA Guide to Family-Centered Care. Washington DC: Society of Pediatric Nurses/American Nurses Association; 2003.

Spear ML, Leef K, Epps S, Locke R. Family reactions during infants’ hospitalization in the neonatal intensive care unit. American Journal of Perinatology. 2002;19(4):205-213.

Spicer K. What every nurse needs to know about breast pumping: instructing and supporting mothers of premature infants in the NICU. Neonatal Network. 2001;20(4):35-39.

Stainton MC, Harvey S, McNeil D. Understanding Uncertain Motherhood: A Phenomenological Study of Women in High-Risk Perinatal Situations. Calgary: University of Calgary; 1995.

Stark J, Thape J. Decision making in neonatal intensive care: a collaboration of parents, physicians, and nurses. Clinical Issues in Perinatology and Women’s Health Nursing. 1993;4(4):589-595.

Sudia-Robinson TM, Freeman SB. Communication patterns and decision-making among parents and health care providers in the neonatal intensive care unit: a case study. Heart & Lung, 2000;29(2):143-148.

Sullivan JR. Development of father-infant attachment in fathers of preterm infants. Neonatal Network. 1999;18(7):33-39.

Sydnor-Greenberg N, Dokken D. Coping and caring in different ways: understanding and meaningful involvement. Pediatric Nursing. 2000;26:185-90.

Thoyre SM. Mothers’ ideas about their role in feeding their high-risk infants. Journal of Perinatal, Obstetric and Neonatal Nursing. 2000;29(6):613-624.

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Van Riper M. Family-provider relationships and well-being in families with preterm infants in the NICU. Heart & Lung. 2001;30:74-84.

Vandenberg K. Supporting parents in the NICU: guidelines for promoting parent confidence and competence. Neonatal Network. 2000;19(6):63-64.

Wallersted SR, Higgins P. Facilitating perinatal grieving between the mother and father. Journal of Perinatal, Obstetric and Neonatal Nursing.1996;25:389-394.

Westrup B, Agneta K, von Eichwald K. Stjernqvist K, Lagercrantz H. A randomized, controlled trial to evaluate the effects of the newborn individualized developmental care and assessment program in a Swedish setting. Pediatrics. 2000;105(1):66-72.

Wocial LD. Life support decisions involving imperiled infants. Journal of Perinatal and Neonatal Nursing. 2000;14(2):73-86.

Workman E. Guiding parents through the death of their infant. Journal of Perinatal, Obstetric and Neonatal Nursing. 2001;30(6):569-573.

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